Mental Illness Awareness Monday | Lizzie @ Big Books and Grande Lattes

If you stopped by my blog for my Change Places With Me: Harper Summer 2016 Tour, you would know that I mentioned the idea of starting a series of mental illness related blog posts on my blog.

This is for a variety of reasons. I am hoping that this series will open up mental illness for discussion, help to reverse the stigma against mental illness, and remind everyone that you are not alone, no matter what you are going through.

This specific discussion comes from Lizzie at Big Books and Grande Lattes. I owe her a huge thank you for writing a post for this series and opening up the discussion on mental health once more. 

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I know that in recent years it has become more acceptable to talk about mental illness.

There are days dedicated to mental health and mental illness awareness, therapy has become more popular, and celebrities have shared their stories, but is it REALLY more acceptable to talk about? 

Personally, I think not. Yes, things have changed. There isn’t as much of a stigma when it comes to mental illness, but that doesn’t mean that it has become easier to talk about when it comes to sharing personal experiences. The moment to tell someone that you’ve suffered from an eating disorder, take Prozac everyday, or go to therapy each week, people look at you differently. This is why I so rarely discuss my experience with mental illness. 

Throughout my life, I’ve dealt with depression, anxiety, and an eating disorder. Along with those I’ve dealt with body image issues. Things started when I was in elementary school, and gradually got worse when I was in middle school. After the death of my grandfather and having my best friend drop me all of a sudden in hopes of being “popular,” I was feeling really sad and could no longer feel happy. I went to a therapist, but she didn’t think anything was wrong, even though I didn’t feel right. Discouraged, I decided to quit seeing her and thought that I could make myself feel better. But I couldn’t. 

During my junior year of high school, I was at my lowest point. I quit doing homework and no longer loved dance, something I had done for over 10 years. After a really emotional World Mythology class, I broke down in tears and told my teacher I had been planning on killing myself. One appointment with the school counselor and one awkward car ride with my mom, I was told by a Psych ER that I was just dealing with teenage angst. However, my mom took me to a couple different therapists to find one I could talk to, and after finding a therapist I liked, and who I then continued to see for about 3 years, I was put on Prozac. 

I had to open up about my lack of motivation and plans of suicide. I also had to admit that I was hardly eating and had become obsessed with my figure and trying to lose weight, despite already being very underweight. This was caused by dance, where my teachers and other dancers would always comment about how small I was, and that was the only time I received positive attention. In therapy, I had to learn to change my perception of my body and create a positive environment for myself at dance. I was starting to feel better. While I was getting better in therapy, everything else was unbearably painful. I couldn’t talk about how I was feeling with anyone. My mom kept asking me what she did wrong and how she screwed up being a mother, my dad was hardly around, my sister was too young to understand, and my friends became uncomfortable when I would bring it up. No one knew how to react. No one knows how to react. That’s why I never bring it up. 

While I no longer take antidepressants, become a wreck at the thought of leaving the house, and starve myself, I know that people's perception of me will change if I tell them about what I dealt with for years. I know that they’ll see me as a girl who’s had issues, who’s needed to take medication for an illness that no one can see. An illness that many people don’t believe is real or think that can be healed by thinking positively. People always feel the need to see symptoms of an illness to prove it’s real, but how do you prove an illness that’s internal and that only you can feel? With this focus on external symptoms, you feel like your mental health is invalid. You feel guilty because there are people with physical illnesses, and yours is internal. It’s become a competition of “Who Suffers More?” If you have a mental illness, you’re always going to lose the competition because your pain isn’t visible. So what’s better: suffer in silence or feel like your internal illness is invalid?
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Lizzie, thank you so much for writing this incredible post. I know it might not be *truly* acceptable to talk about yet, but your post and words are helping to change that atmosphere for the better.

Please utilize the comment section below! You can share words of support and encouragement, discuss this specific post as well as other aspects of mental illness. Remember that this blog is a safe space and absolutely no hate will be tolerated, so please read your comments carefully before posting!

As always, be sure to check out Lizzie on Big Books and Grande Lattes, or @LizzieSarcastic on Twitter!

xoxo,
Sheridan

Mental Illness Awareness Mondays: Kaitlin and PNES

If you stopped by my blog for my Change Places With Me: Harper Summer 2016 Tour, you would know that I mentioned the idea of starting a series of mental illness related blog posts on my blog. 

This is for a variety of reasons. I am hoping that this series will open up mental illness for discussion, help to reverse the stigma against mental illness, and remind everyone that you are not alone, no matter what you are going through. 

This post is one of these posts. Kaitlin from www.vivacioushobo.com offered to share her experience with mental illness and the struggles that she faces every day, especially with the stigma against mental illness. Rather than speak for her, I'll let you read her post now. 

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I have PNES (Psychogenic Non-Epileptic Seizures). I was diagnosed with epilepsy in February 2014 after months of having several seizures per day. I did not know I was having seizures, because I only knew about grand mal seizures (the kind where you fall and shake.) My seizures are much different. I behave oddly. I do repetitive movements (like pulling on my shirt over and over), repeat words or phrases, stare blankly, have difficulty speaking, and talk differently with a high pitched childish voice. 

I was very relieved to get a diagnosis of epilepsy, and finally know what was happening to me. This was happening multiple times per day! I was put on two separate anti-epilepsy medicines and was still having seizures daily, or at least every other day. Eventually, I went to the epilepsy monitoring unit and was connected to an EEG and had 24 hour video monitoring for 5 days. They did record my seizures via the video, but nothing showed up on the EEG. They told me this meant that I was having pseudo seizures. I asked if that meant they thought I was faking it, because I absolutely am not. They told me no, they are real seizures, they just don't have anything to do with epilepsy, since the seizures are not caused by electrical activity in my brain. 

They told me the pseudo seizures are caused by mental trauma. The seizures are real, the same way people who have schizophrenia hear voices that aren't there. They aren't making it up, but it is happening in their mind. "But I don't want to be insane." I whispered to the doctor with tears streaming down my face. She explained that having PNES is not insanity and there is nothing wrong with having mental illness, it is the same as any other illness, there is just not a physical cause.

I thought having seizures was scary, but for some reason being diagnosed with PNES is scarier, and more upsetting to me. Even though it is estimated that 30% of people diagnosed with epilepsy actually have PNES, I had never heard of anyone having this before. Because of the shame and stigma associated with psychiatric illness, I don't tell people I have PNES, I still tell people that I have epilepsy. That way if I do have a seizure when I am with someone they will know what to expect. I don't want people to judge me or call me crazy. I have major anxiety that people are going to stop talking to me if they find out that I have a mental illness, rather than epilepsy. 

 Before I was diagnosed with epilepsy and we were trying to figure out what was happening, I had one friend tell me I am doing this to myself, and that it is my fault that I am sick. She said if I tried harder, and exercised and ate healthier, that I probably wouldn’t have any problems at all. I felt vindicated to know that she was wrong and I had epilepsy. Now that I know I have PNES, I can't help thinking about the things she said, and worry that other people will feel like that. Because of the stigma associated with mental illness, I don't feel comfortable sharing my problems with anyone other than my husband.

Because of self-stigma I avoid many social interactions. I can't do a lot of things that other people can do anymore, like drive, or go on amusement rides, and I worry that this will affect my friendships because now people have to make more of an effort to be around me, and I feel like if they knew I had mental illness instead of epilepsy, they wouldn't make the effort anymore.

Telling people I have PNES is hard. I feel like I have this huge bomb to drop on people's laps. I automatically feel defensive and upset, thinking someone might have a negative reaction or judge me. I know that if more people talk about having mental illnesses the stigma will eventually go away, but I am just not brave enough to tell the people in my life yet. I hope this article helps.

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Thank you so much to Kaitlin from www.vivacioushobo.com for contributing to my blog with this amazing post. I also have to give her an extra thank you because she was the very first person that volunteered to write a blog post for my mental illness awareness series. Thank you so much, Kaitlin!

Feel free to post in the comments your thoughts about this post, along with words of support and encouragement. This "series" of blog posts is meant to be a discussion as well so please feel free to use the comments!

As always, be sure to check out Kaitlin on www.vivacioushobo.com, or @vivacioushobo on Twitter!

xoxo,

Sheridan